When we have been talking to Benjamin's doctors and other people who have been around preemies, especially micro-preemies (I just learned that word today - it is the smallest class of preemies and is what Benjamin fits into) they describe the journey as two steps forward and one step back. Today was a little step back. I found out that Benjamin actually had a bit of a rough night. His nighttime nurse said he was uncomfortable for several hours and they ended up putting him back on the morphine drip. This isn't too bad considering he had two surgeries in the past week. His bilirubin (jaundice) levels have also increased. The poor little guy probably thought he was in Hawaii as they now have 4 lights on him including a fancy one that is built into a pad he lays on. When we left tonight he seemed slightly distressed because they had him laying flat and totally exposed and couldn't even swaddle up his feet, which is an insecure feeling to a newborn. He is not progressing with the ventilator as they had hoped. In fact, instead of going down in oxygen levels, he actual went up today. All of this means that we won't get to hold him tomorrow as we hoped, but we are ok with that if it will help him get better.
We continue to praise God for the overall progress that was made this week and are praying that Benjamin's lungs would be strengthened and his system able to start on food soon so he can start growing. Tonight we are pretty worn out and I am having separation anxiety. Though the staff in the NICU are wonderful and more than capable, it is still so hard to leave him, especially on the stepping back days.
Thank you for continuing to stand with us in prayer.
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